Right now the treatment Paul gets takes 3.5 hours. Parking in North Adelaide around the hospital is only 2 hours. Incredibly, there is no system by which the hospital is allowed to give us a waiver Paul could stick in the window of his car so that he wouldn’t get a parking ticket.
The Government of South Australia – Department of Planning, Transport and Infrastructure – has turned down our application for Paul to get a temporary disability permit – which would have allowed him to park for the sufficiency of time needed to obtain chemotherapy.
Instead, they feel that because his movement is only designated as “moderately” restricted and the ability to use public transport is not impeded by the disability – the bus is good enough for him if he can’t get a lift. Taking the bus involves a short walk, then 40 minutes to make a 10 minute journey.
It’s not that I don’t want to drive him. It’s that I’m trying to be balance work and this situation, trying not to take time out of the allotted hours I get for carer’s leave so that I can save those for emergencies and trying to give lessen the impact this has on our lives as much as possible.
I am incredibly lucky that I work with understanding people and I don’t want to push my luck. This permit would have enabled us to have one less worry at a time when we have so many.